Sunday, 13 September 2026

Bangladeshi East End: One Collection, Many Histories

 

Bangladeshi East End: One Collection, Many Histories

From lived experience to the archive

There is sometimes an assumption that a collection of books about the Bangladeshi East End should fit neatly into one category.

Migration history.

Political history.

Community history.

Photography.

Biography.

Racism.

Women’s history.

Youth activism.

Memory.

But the Bangladeshi East End is not one subject — and therefore the books documenting it cannot be expected to be one genre.

This is the thinking behind Bangladeshi East End — B.E.E.

Not one genre. Not one story. Many histories — preserved under one imprint.

The B.E.E. books have developed over many years, from personal experience, community involvement, photography, research, interviews, observation and documentation.

They are different books because they record different dimensions of the same historical landscape.

And increasingly, something else is happening.

The books are becoming part of a wider historical record — alongside photographs, community archives, library catalogues, archival collections and national library holdings.

The journey is moving beyond publication.

It is becoming:

lived experience → community documentation → photography → research → publication → B.E.E. imprint → archive → library catalogue → preservation → future research.


Migration, settlement and community foundations

Bangladeshi East End: Brick & Mortar

At the foundation of B.E.E. is the story of settlement.

Bangladeshi East End: Brick & Mortar looks at the physical and social foundations of the Bangladeshi presence in the East End — homes, streets, businesses, cafés, networks and community infrastructure.

This is migration history, but it is also social history.

The story is not simply about people arriving in Britain.

It is about people building lives.

The East End became a place where families settled, businesses developed, communities organised and identities evolved.

The buildings and streets became part of that story.

Brick and mortar became evidence of belonging.


Political history and representation

Tower Hamlets Bangladeshi Politicians’ Reference Book 1982–2018

Politics creates another historical record.

The Bangladeshi political story of Tower Hamlets is not simply a list of councillors.

It reflects changing patterns of representation, independence, party politics, community organisation and political participation.

The Tower Hamlets Bangladeshi Politicians’ Reference Book 1982–2018 therefore belongs to the field of political and local-government history.

It is also a reference work.

Its purpose is different from a narrative history.

It records names, wards, elections and political developments so that future researchers can identify who represented the community and when.

That is why classification matters.

A political reference book should not be confused with a migration history, just as a migration history should not be confused with a photographic record.

They answer different historical questions.


Youth, activism and political awakening

Young Voice

The history of a community cannot be understood through its adult institutions alone.

Young people were not simply observers of the East End.

They participated in it.

They challenged it.

They organised within it.

They responded to racism, policing, education, identity and social change.

Young Voice belongs therefore to youth history, community history and activism.

It records a generation finding its voice.

That makes it different again from the political reference books.

The politicians record representation.

The youth material records participation and experience.


Community change and social documentation

Tides of Change – Snapshots of 1993–94

Photography provides another form of historical evidence.

A photograph can record something that an official report never notices.

A street.

A shop.

A gathering.

A face.

A demonstration.

A community event.

A moment of political activity.

Tides of Change captures a period of change through documentary photography.

It is therefore visual history and social documentation.

The photographs are not merely illustrations for a written history.

They are historical sources in their own right.


When the photographs become archive material

This is where the story becomes particularly important.

The photographs did not simply remain in personal collections.

Some became part of the archival record.

The Tower Hamlets Local History Library and Archives has catalogued records associated with the Progressive Youth Organisation, including material kept by Mayar Akash.

The collection is catalogued under S/PYO.

The archival description records reports, event and meeting papers, photographs and material concerning Bengali youth, community activity, politics, activism, policing, education and other aspects of East End life.

But the story did not stop with the first deposit.

A later exchange with the archive provides an important insight into how historical material develops over time.

Richard Wiltshire, Archives Manager at Tower Hamlets Local History Library and Archives, confirmed that additional material supplied by Mayar had been accessioned under TH_10735, with the archive stating that the originals would be welcomed in the longer term.

The material was therefore not simply being stored informally.

It had entered the accession process.

It was becoming identifiable archival material.


From S/PYO/1 to S/PYO/2

The next stage is even more revealing.

The archive subsequently contacted Mayar to explain that a History placement student from Queen Mary University of London had completed cataloguing the additional photographs.

These photographs were catalogued as S/PYO/2, building upon the earlier photographic material under S/PYO/1.

The archive used the captions that had been prepared around the photographic bundles.

And importantly, the archive asked Mayar to review the descriptions.

Any unresolved question marks could be clarified.

Any corrections could be identified.

The catalogue could then be amended before the descriptions were released publicly.

That process matters.

It demonstrates that the photographer and original documentarian is being given an opportunity to contribute contextual knowledge to the archival description.

The archive is not simply taking photographs and placing them somewhere.

It is building a searchable historical record around them.

Once released, the material will be searchable through the Tower Hamlets Local History Library and Archives online catalogue, with the images also identified as viewable through the Bengali Photo Archive.

This creates a chain of custody for historical knowledge:

photograph → caption → archive → cataloguing → verification → online discovery.

That is a very different life for a photograph from sitting in a personal album.


The photograph has another life

A photograph can begin as a moment.

It can then become documentation.

Later it can become evidence.

Eventually it can become an archival source.

The person who took the photograph may know who is standing there.

Why they gathered.

What had happened beforehand.

What happened afterwards.

Why the photograph mattered.

That contextual knowledge can disappear with time.

This is why the process of cataloguing is so important.

The photograph preserves the image.

The description preserves part of the context.

The catalogue preserves the connection between them.

Future researchers may not know the people personally.

They may not have lived through the events.

But they can discover the material.

And that is one of the most important transformations in the B.E.E. story:

memory becomes documentation; documentation becomes an archival source.


Racism, violence and community resistance

Vigil Sabotaged

The East End's history also contains difficult chapters.

Vigil Sabotaged examines the 1993 vigil following the death of Quddus Ali and documents the atmosphere surrounding community resistance.

The book combines photography, personal observation and first-hand accounts.

It therefore sits between documentary photography, community history and anti-racist history.

Again, classification becomes complicated.

It is not simply a photography book.

It is not simply an autobiography.

It is not simply a political history.

It is a historical document built from lived experience.


The forgotten victims

B.E.E. Murders

The history of racist violence requires another category.

B.E.E. Murders examines racist murders of East Pakistani and Bangladeshi men during the decades when the community was establishing itself in Britain.

Newspaper reports, community memory, activist records and testimony help reconstruct cases that can otherwise disappear from public memory.

This places the book within historical crime, racist-violence history, social history and memorial history.

The victims become part of a historical record rather than remaining names that appear briefly in old newspaper reports.


The murder that changed the East End

Altab Ali: The Murder

The murder of Altab Ali has its own place within the B.E.E. collection.

It is simultaneously:

  • historical biography
  • crime history
  • anti-racist history
  • community history
  • political history
  • memorial history

That is precisely why it cannot comfortably sit inside a single genre.

The murder was an event.

But what followed became a movement.


The person behind the symbol

Altab Ali: Life & Family

Before Altab Ali became a symbol, he was a person.

A son.

A brother.

A family member.

A worker.

A human being.

Altab Ali: Life & Family therefore shifts the focus away from the political symbol and back towards biography and family history.

It asks a different question:

Who was Altab Ali before history transformed him into a symbol?

That distinction matters.

History can turn an individual into an emblem.

Biography tries to recover the person.


Memory, identity and the creation of a symbol

Altab Ali – The Symbol

The next layer is memory.

How does a person become a symbol?

How does a community remember?

How does a murder become connected to political awakening, identity and resistance?

Altab Ali – The Symbol explores that process through memory, testimony, imagery and community experience.

This is therefore closer to memory studies, cultural history and identity history.

Again, another subject.

Another historical discipline.

Another reason why B.E.E. cannot be reduced to a single genre.


When memory becomes institutional history

Altab Ali Foundationed

Altab Ali Foundationed takes the story further into community organisation, activism and institutional memory.

It examines the historical environment surrounding racism in 1970s Britain, the Battle of Brick Lane, grassroots activism, youth identity, cross-community alliances, trade-union solidarity, faith networks and the continuing political struggle over how Altab Ali's name and memory should be represented.

This is community history becoming institutional history.

The memory of an individual becomes part of the physical and political landscape of a city.


Women’s history

NARI

Then there is another history which cannot be left as a footnote.

Women.

NARI approaches the East End through the experiences and achievements of Bangladeshi women.

Pioneers.

Organisers.

Councillors.

Parliamentarians.

Judges.

Academics.

Artists.

Journalists.

Entrepreneurs.

Community leaders.

The history of migration cannot be complete without the history of the women who sustained families, created organisations, entered professions, challenged institutions and shaped the community.

NARI therefore belongs to women's history, gender history, biography and British Bangladeshi history.

It adds another dimension to B.E.E.


One community — many histories

B.E.E. workHistorical field
Brick & MortarMigration, settlement & social history
Tower Hamlets Bangladeshi Politicians’ Reference BookPolitical & local-government history
Young VoiceYouth & activism
Tides of ChangeDocumentary & visual history
Vigil SabotagedAnti-racist & community history
B.E.E. MurdersHistorical crime & racist-violence history
Altab Ali: The MurderCrime, biography & anti-racist history
Altab Ali: Life & FamilyBiography & family history
Altab Ali – The SymbolMemory, identity & cultural history
Altab Ali FoundationedInstitutional & community history
NARIWomen's & gender history

This is why the B.E.E. imprint exists.

Not to force different books into the same category.

But to recognise that they are connected.


Different books. Different readers. One East End.

A historian researching migration may begin with Brick & Mortar.

A researcher studying local government may need the politicians' reference book.

Someone researching youth activism may turn to Young Voice.

A researcher studying visual culture may begin with Tides of Change.

Someone examining racist violence may need B.E.E. Murders or Vigil Sabotaged.

A researcher studying Altab Ali may require several books because the subject changes depending on the question.

And someone researching Bangladeshi women's history may begin with NARI.

The books are different because the questions are different.


From books to a historical corpus

The more books accumulate, the more obvious another question becomes.

What happens when individual publications begin to form a body of work?

At some point, the books are no longer simply separate publications.

They become a historical corpus.

A body of published material through which different aspects of a community can be studied.

This is where the B.E.E. imprint becomes useful.

It provides a connecting identity without pretending that every book is the same kind of book.

One author.
Many subjects.
Many historical disciplines.
One historical thread.


The catalogue starts connecting the books

Something particularly interesting happens when libraries begin to catalogue the material.

A book can exist as a physical object.

But once a library catalogue records the author, title, subject and publication information, it becomes discoverable.

The same applies to archival material.

Once photographs, papers and records are catalogued, researchers can find them.

The catalogue becomes a bridge between the material and the researcher.

That is why cataloguing is not an administrative afterthought.

It is part of preservation.


The National Library of Wales: 19 books — and one missing piece

This process has also appeared at national-library level.

The National Library of Wales has been working to ensure that the correct author identity is connected to publications in its catalogue.

In correspondence concerning NACO — Name Authority Cooperative authority control — the library contacted Mayar to clarify the identity attached to works appearing in the catalogues of the Legal Deposit Libraries.

The correspondence subsequently confirmed the author connection to Let's Learn Bengali as well.

This is not an award.

It is not a literary endorsement.

It is something more quietly important for the historical record:

author identification and catalogue accuracy.

Then came another message from the National Library of Wales.

The library stated that it holds 19 books authored by Mayar Akash.

But it identified one significant absence:

Bangladeshi East End.

The library asked whether a copy could be supplied.

That request is particularly interesting because Bangladeshi East End sits at the centre of the B.E.E. concept.

The library already has nineteen books.

One important title is missing.

The result is almost symbolic.

A collection is beginning to form — and the institution has identified the missing piece.


Legal deposit and the life of a book

Legal deposit gives published material another kind of life.

A book can be sold.

A book can go out of print.

A website can disappear.

A publisher can stop trading.

But once a publication enters the national library system, it becomes part of a much larger preservation framework.

The objective is not simply today's readership.

It is tomorrow's researcher.

The researcher who may want to know what was being published about the Bangladeshi East End in the early twenty-first century.

The researcher who may be studying British Bangladeshi political history.

The researcher examining migration.

The researcher investigating racism.

The researcher studying community activism.

Or the researcher asking a question that has not yet been imagined.


And then there is Tower Hamlets

The National Library of Wales represents one side of the story.

Tower Hamlets represents another.

This is where the geographical and historical relationship becomes particularly powerful.

The community being documented is the East End.

The photographs were taken within that community.

The Progressive Youth Organisation records relate to that community.

The books document that community.

And the Tower Hamlets Local History Library and Archives is preserving original records relating to that history.

The archival material is not simply about a distant historical subject.

It is material generated within the community itself.


From TH_10735 to S/PYO/2

The correspondence surrounding TH_10735 and S/PYO/2 illustrates the process.

First, additional copies and material were supplied.

The archive confirmed their accession under TH_10735, noting that they would be available by appointment until catalogued and that the originals would be welcomed in the longer term.

Then the photographs were incorporated into the ongoing archival process.

The newer photographs became S/PYO/2, adding to S/PYO/1.

A History placement student from Queen Mary University of London completed the cataloguing work.

The descriptions were built partly from the captions supplied with the photographic bundles.

And before the catalogue was released publicly, the archive asked the original documentarian to review the descriptions, resolve questions and identify corrections.

That is historical collaboration.

The archive brings professional cataloguing.

The photographer brings contextual memory.

Together they create a stronger historical record.


When the community record becomes the research record

There is a point at which community documentation changes status.

A photograph taken for a local purpose may later become evidence for a researcher.

A meeting paper may become evidence of political organisation.

A youth project photograph may become evidence of social change.

A personal account may become evidence of community experience.

A book written from lived experience may become a secondary source for a future academic.

The distinction between community record and research record can therefore become increasingly blurred.

That is not a weakness.

It is often how history survives.


Oxford adds another dimension

There is also a classification question emerging around the B.E.E. imprint itself.

Oxford has sought clarification concerning the B.E.E. imprint and how this body of work should be classified.

That is an interesting question because B.E.E. does not sit comfortably within one conventional subject heading.

It contains migration history.

Political history.

Youth history.

Visual history.

Biography.

Women's history.

Anti-racist history.

Community history.

Memory and identity.

The difficulty of classification is therefore almost a consequence of what the collection is trying to preserve.

It is many histories under one imprint.


Why the B.E.E. imprint is difficult to classify

Perhaps the simplest answer is that B.E.E. is not intended to be a single genre.

It is an umbrella.

The books remain individually identifiable by their subjects.

But collectively they form a historical thread.

The imprint makes the relationship visible.

That allows:

migration history to sit beside political history;

photography beside biography;

youth activism beside women's history;

racist violence beside community memory.

They are not the same subject.

They are connected histories.


A book can have more than one life

The life of a book does not necessarily end with publication.

It can have several lives.

First life:

The author writes it.

Second life:

Readers buy or borrow it.

Third life:

A library catalogues it.

Fourth life:

Researchers discover it.

Fifth life:

An archive preserves related primary material.

Sixth life:

A future generation interprets it differently.

This is why publication matters beyond sales.

Sales measure a moment.

Preservation measures possibility.


From B.E.E. books to a historical record

The development of B.E.E. can therefore be seen as a gradual movement:

Experience

Documentation

Photography

Community records

Independent research

Books

B.E.E. imprint

Library catalogues

Archival collections

National collections

Future research

This is not a claim that every book is an archive.

They are publications.

Nor is every catalogue entry an endorsement.

It is something more factual:

the material is becoming discoverable, identifiable and preservable within institutions whose purpose is to maintain the historical record.


One author. Many subjects. Many catalogues. One historical thread.

There is something fitting about the different institutions recording different parts of the same story.

The Tower Hamlets Local History Library and Archives preserves community records and photographs.

The National Archives records the existence of the Progressive Youth Organisation material within the archival landscape.

The National Library of Wales holds books and is working to ensure the correct author identity is attached to them.

The Bodleian Libraries at Oxford have engaged with the question of how the B.E.E. imprint should be understood and classified.

The Bengali Photo Archive provides another route through which the photographic record can be viewed.

None of these institutions is doing exactly the same thing.

And that is the point.

Each preserves a different part of the historical chain.


The missing piece

The National Library of Wales saying it holds 19 books authored by Mayar Akash, while specifically asking for Bangladeshi East End, is a small exchange with a much larger implication.

A collection is never finished.

There is always another photograph.

Another document.

Another name.

Another book.

Another story.

Another missing piece.

And perhaps that is the most appropriate way to understand B.E.E.

It is not a finished history.

It is an evolving body of work attempting to document a community from multiple perspectives.

The books are pieces.

The photographs are pieces.

The archives are pieces.

The catalogues are pieces.

The memories are pieces.

The researchers of the future will have to put some of those pieces together.


From lived experience to the archive

The story therefore comes full circle.

A young person experiences the East End.

A community organises.

A photographer documents it.

A writer records it.

A publisher produces it.

A library catalogues it.

An archive preserves it.

A national collection identifies it.

And, eventually, another researcher discovers it.

That is how a lived community history can become part of the historical record.

Not because one book explains everything.

But because many records survive.


Bangladeshi East End — B.E.E.

Different books.

Different subjects.

Different historical disciplines.

Different readers.

Different libraries.

Different archives.

Different forms of evidence.

One community.

One evolving historical record.

One author documenting many parts of it.

One imprint connecting the histories.

Bangladeshi East End — B.E.E.

Not one genre.
Not one story.
Many histories — preserved under one imprint.

THE NATIONAL LIBRARY OF WALES: 19 BOOKS — AND ONE MISSING PIECE

 

THE NATIONAL LIBRARY OF WALES: 19 BOOKS — AND ONE MISSING PIECE

The National Library of Wales provides another important piece of evidence in the growing institutional record around Mayar Akash's work.

Following the library's NACO correspondence to establish the correct author identity, a further message from Mark Even revealed something rather remarkable:

The National Library of Wales already holds 19 books authored by Mayar Akash.

But there was one notable omission.

The library did not have a copy of Bangladeshi East End.

Rather than simply leaving the gap, the library contacted the author directly:

“We have 19 books that you have authored here at the National Library of Wales, but we DON'T have a copy of ‘Bangladeshi East End’ — would it be possible for you send us a copy of this book?”

That short request carries considerably more significance than it might first appear.

The library is not merely acknowledging that a book exists.

It has already built a substantial collection of the author's work.

And it has identified Bangladeshi East End as a missing part of that collection.

The author now has the opportunity to complete the gap.


WHY THIS MATTERS TO B.E.E.

The significance is particularly strong because Bangladeshi East End is not simply another book in the wider bibliography.

It represents the B.E.E. project itself.

The B.E.E. imprint brings together histories of migration, settlement, youth, politics, racism, murder, biography, family, women's history, memory, identity and community heritage.

For the National Library of Wales to already hold 19 books by the same author — while specifically requesting a copy of Bangladeshi East End — creates an interesting institutional picture.

The author's wider bibliography is already present.

Now one of the key books representing the Bangladeshi East End project has been identified as a missing piece.

It is almost an accidental illustration of the philosophy behind the work:

one book is one piece of the historical record.

Put enough pieces together and a much larger picture begins to appear.


FROM NACO TO COLLECTION

The sequence is worth noticing.

First, the National Library of Wales contacted the author because his name appeared in the catalogues of the Legal Deposit Libraries.

The library wanted to ensure that works attributed to “Mayar Akash” were correctly connected to the right individual.

The subsequent correspondence confirmed that the process was part of the NACO — Name Authority Cooperative — system, which libraries use to distinguish authors and editors and ensure that works are correctly attributed.

Then came the revelation:

19 books are already held by the National Library of Wales.

And then came the request for the missing title:

Bangladeshi East End.

That sequence demonstrates three different stages of bibliographic recognition:

1. Author identification

Who is the correct Mayar Akash?

2. Bibliographic accumulation

Which works by that author are held?

3. Collection completeness

Which significant work is still missing?

That is a very different story from simply saying that an author has sold books.


THE LIBRARY IS SEEING THE BIBLIOGRAPHY AS A WHOLE

There is another subtle point here.

The 19 books cover different subjects.

They are not 19 versions of the same book.

They span different areas of research, experience and writing.

That makes the library's collection particularly interesting.

The books can be read individually.

But together they create an authorial record.

And that brings us back to the B.E.E. question.

The B.E.E. books themselves cover different historical disciplines.

They are connected not because they all belong to one conventional genre, but because they share a historical geography and community focus.

That is why the collection can be understood as a historical corpus rather than a conventional single-genre series.


THE MISSING BOOK

There is something almost symbolic about the National Library of Wales asking specifically for Bangladeshi East End.

The book is concerned with the development of the Bangladeshi presence in London's East End.

It sits at the heart of the B.E.E. project.

And yet, within a national library collection containing 19 other books by the author, this particular title was absent.

The request therefore creates an opportunity to put another piece into place.

Once supplied and catalogued, Bangladeshi East End can sit alongside the author's other works and within the wider legal-deposit/library environment.

The significance should not be exaggerated.

The library's request is not a literary award or critical endorsement.

It is a collection and cataloguing matter.

But that is precisely what makes it interesting.

Libraries preserve the record.

And the National Library of Wales has effectively said:

we have much of this author's work; this important title is one of the pieces we are missing.


TOWER HAMLETS, OXFORD AND WALES

The Welsh evidence becomes even more powerful when placed alongside the other institutional connections.

Tower Hamlets Local History Library & Archives

The author's original community records and photographs are preserved within the S/PYO archival collection.

The National Archives

The S/PYO material is also identified in the national archival accessions record.

Tower Hamlets Local History Library

The Tower Hamlets Bangladeshi Politicians Reference Book has entered the local-history environment of the borough whose political history it documents.

National Library of Wales

The library already holds 19 books authored by Mayar Akash, has undertaken the NACO author-identification process, and has specifically requested a copy of Bangladeshi East End to add to its collection.

Oxford

Oxford has sought clarification concerning the B.E.E. imprint and its classification.

These are different forms of institutional engagement.

But together they tell an increasingly coherent story.

The records are being preserved.

The books are being catalogued.

The author is being authoritatively identified.

The bibliography is being accumulated.

The B.E.E. imprint is raising classification questions.

And the work is becoming increasingly discoverable outside the community in which it originated.


FROM COMMUNITY HISTORY TO NATIONAL COLLECTION

This is perhaps the most important transition.

B.E.E. began with a simple principle:

record what might otherwise be lost.

The people.

The photographs.

The events.

The politics.

The struggles.

The families.

The women.

The young people.

The victims.

The community organisations.

The memories.

Publishing gives those records a public form.

Libraries give them another kind of life.

Archives preserve the source material.

Catalogues make the material discoverable.

And national collections can ensure that the material survives beyond the immediate generation that created it.

That is why the National Library of Wales request matters.

It demonstrates that the story is moving beyond the original geographical setting.

The history of the Bangladeshi East End is being preserved not only in East London, but within the wider network of Britain's national library and archive infrastructure.


THE B.E.E. COLLECTION IS NOT ONE GENRE

And this brings us back to the central question of classification.

Why did Oxford need clarification about B.E.E.?

Because the books do not fit comfortably into one box.

Migration history.

Settlement history.

Political history.

Youth history.

Visual history.

Anti-racist history.

Crime history.

Biography.

Family history.

Women's history.

Memory and identity.

Community heritage.

Different books require different subject approaches.

Yet they remain connected by one geographical and cultural thread:

the Bangladeshi East End.

That is what makes B.E.E. distinctive.

It is not one genre.

It is a body of interconnected histories.


THE LIBRARY AS THE LONG MEMORY

Commercial publishing measures success in one way.

Sales.

Orders.

Reviews.

Rankings.

Libraries measure something different.

Continuity.

A library asks:

Will this publication still be discoverable?

Can someone research it?

Can a future generation find it?

Can the catalogue establish who wrote it?

Can the institution preserve it?

Can the publication become part of the documentary record?

The National Library of Wales now provides an unusually clear example of that process.

Nineteen books are already there.

One more has been identified as missing.

And the author has been asked whether he can supply it.


ONE MORE PIECE OF THE PUZZLE

There is a pleasing symmetry to the request.

The B.E.E. project is about collecting the pieces of a community's history.

Now a national library has effectively identified one missing piece of the author's own published record.

Bangladeshi East End is that missing piece.

And if the copy is supplied, another part of the record will be brought together.

Not because it makes the book a bestseller.

Not because it gives it an award.

But because it gives the work another kind of permanence:

a place within a national collection.


FROM THE EAST END TO THE NATIONAL RECORD

The journey of this work can therefore be understood in a much larger way.

Lived experience

Community documentation

Photography and original records

Independent research

Publication

B.E.E. imprint

Archive

Library catalogue

Author authority record

National collection

Future research

That is a journey few independent community publishing projects can demonstrate so clearly.

The books began as an attempt to preserve history.

They are now becoming part of the infrastructure through which history itself is preserved.

And perhaps that is the most important measure of B.E.E.'s long-term impact.

Not simply:

How many copies were sold?

But:

Will somebody still be able to find this history fifty or a hundred years from now?

The evidence increasingly suggests that the answer may be:

yes.

Different books.

Different subjects.

Different historical disciplines.

Different libraries and archives.

One community.

One evolving record.

Bangladeshi East End — B.E.E.

LEGAL DEPOSIT AND AUTHOR IDENTITY: WHEN THE CATALOGUE STARTS CONNECTING THE BOOKS

 

LEGAL DEPOSIT AND AUTHOR IDENTITY: WHEN THE CATALOGUE STARTS CONNECTING THE BOOKS

There is another important piece of evidence in the wider story of Mayar Akash's publishing record.

In July 2026, the National Library of Wales contacted Mayar Akash concerning his publication Zionist vs Zionist. The letter explained that his name appeared in the catalogues of the Legal Deposit Libraries and requested information to ensure that the works attributed to him were correctly connected to the right author.

The correspondence subsequently clarified that this was part of the NACO — Name Authority Cooperative — process, through which libraries establish consistent and authoritative names for authors and editors so that works by the same person can be correctly connected in library catalogues.

The follow-up correspondence from Mark Even at the National Library of Wales confirmed the purpose:

“We send many NACO letters out to authors/editors etc to confirm we have the correct person attributed to the correct works/books.”

In Mayar Akash's case, that process also confirmed that he was the author of Let's Learn Bengali.

This is an important distinction.

It is not a literary award.

It is not a critical endorsement.

It is not the library saying that every book belongs to one particular academic discipline.

It is something more fundamental:

the library is establishing an authoritative bibliographic identity for the author and connecting his published works to that identity.

That matters because the catalogue is no longer dealing with an isolated book.

It is beginning to connect multiple publications by the same author.

And that is particularly interesting in the case of Mayar Akash because the books themselves cover an unusually wide range of subjects.


FROM ONE AUTHOR TO A BODY OF WORK

The significance becomes clearer when the Welsh correspondence is considered alongside the other institutional records.

The publications attributed to Mayar Akash span subjects including:

  • British Bangladeshi history
  • Tower Hamlets political history
  • migration and settlement
  • Bengali language
  • youth and community activism
  • photography and visual history
  • racism and anti-racist history
  • biography
  • women's history
  • health and lived experience
  • food and nutrition
  • Cornwall and Penzance
  • international and political subjects

The NACO process therefore has a practical importance.

Without authoritative identification, different publications can potentially become fragmented across catalogue systems, particularly when authors have common names or publish under different forms of their name.

The purpose of the process is to ensure that:

the right Mayar Akash is connected to the right books.

Over time, that can make the author's wider bibliography substantially easier for researchers to discover.


THE IMPORTANCE OF LEGAL DEPOSIT

The Welsh correspondence also sits within the wider legal-deposit system.

The National Library of Wales is one of the UK's Legal Deposit Libraries, alongside the British Library, Bodleian Libraries at Oxford, Cambridge University Library and the National Library of Scotland, with Trinity College Dublin forming part of the wider UK and Irish legal-deposit framework.

Legal deposit provides a mechanism through which published material is collected, preserved and made available for future research.

This creates a different kind of longevity from commercial availability.

A book may stop appearing prominently in an online shop.

An Amazon ranking may change.

A publisher's website may eventually change.

But a catalogue record has another purpose:

to help future researchers find the publication.

That is why the NACO correspondence is relevant to the wider story of the B.E.E. books.

It demonstrates one of the less visible stages in the life of a book:

publication → catalogue record → authoritative author identification → future discoverability.


AND THEN THERE IS TOWER HAMLETS

The Welsh evidence becomes even more interesting when placed beside the author's relationship with the Tower Hamlets archive.

Tower Hamlets Local History Library & Archives has preserved an identifiable body of original material associated with Mayar Akash and the Progressive Youth Organisation.

The catalogue's S/PYO collection contains 75 files covering community activity, youth work, politics, education, housing, relations with the police, events, training and photographs.

The National Archives also records the collection as Progressive Youth Organisation records, mainly kept by Akkas Miah, later known as Mayar Akash.

This creates an unusual relationship between author and archive.

Some of the material that now helps document the history of the East End was created during the period being documented.

Some of it subsequently became the foundation for published historical work.

And some of that published work is now itself entering library and catalogue systems.

The journey therefore becomes:

community activity → documentation → archive → research → publication → catalogue → preservation.


OXFORD ADDS ANOTHER DIMENSION

Then there is the Oxford connection.

Oxford has sought clarification concerning the B.E.E. imprint and its classification.

That is different again.

The Welsh NACO correspondence is about who the author is.

The Tower Hamlets archive is about preserving the historical records.

Oxford's enquiry concerns how the B.E.E. body of published work should be understood and classified.

These are three different institutional questions:

Who wrote it?

NACO / author authority

What historical material exists?

Archive / archival preservation

What is this body of published work?

Imprint / classification

Together, they begin to tell a much bigger story about the development of B.E.E.


WHY THE B.E.E. IMPRINT IS DIFFICULT TO CLASSIFY

The reason Oxford's classification question is understandable becomes obvious when the books are placed side by side.

Brick & Mortar is fundamentally about:

migration, settlement and community history.

Young Voice is about:

youth, identity and activism.

Tides of Change is:

documentary and visual social history.

Vigil Sabotaged concerns:

community conflict, racism and witness history.

B.E.E. Murders moves into:

racist violence, crime history and memorialisation.

Altab Ali: Murder is:

historical crime and biography.

Altab Ali: Life & Family is:

family history and biography.

Altab Ali: The Symbol is:

memory, identity and cultural history.

Altab Ali Foundationed moves into:

community heritage and institutional history.

NARI brings:

women's history, gender, biography and community history.

The books are therefore not one genre.

They are a historical corpus.

The common denominator is the community, geography and experience from which the histories emerge.


WHEN THE COMMUNITY RECORD BECOMES THE RESEARCH RECORD

This is perhaps the most important development.

The B.E.E. project did not begin as an academic exercise in classification.

It began with the need to record histories.

People.

Places.

Events.

Photographs.

Political developments.

Community struggles.

Victims.

Families.

Women.

Young people.

Memories.

But history that is recorded can eventually become history that is researched.

That is the transition now taking place.

The material is moving from:

memory

to

documentation

to

publication

to

cataloguing

to

research accessibility.

That is a different measure of impact from sales.


A BOOK CAN HAVE MORE THAN ONE LIFE

There is also an important lesson here for independent publishing.

A book has its commercial life.

It may have an Amazon ranking.

It may be sold through independent bookshops.

It may be ordered internationally.

But it can also have a documentary life.

It can enter a library.

It can become part of an archive.

It can acquire an authoritative catalogue record.

It can be cited by researchers.

It can be discovered decades after publication by somebody researching a particular person, place or event.

The NACO process at the National Library of Wales is a reminder of that second life.

The commercial marketplace asks:

Who is buying this book?

The library catalogue asks:

What is this book, who wrote it, and how can somebody find it again?

Both matter.

But they measure different kinds of impact.


FROM B.E.E. BOOKS TO A HISTORICAL RECORD

This is why the B.E.E. collection deserves to be understood on more than one level.

At one level, these are independently published books.

At another, they are a collection of different historical studies.

At another, they form a record of a community.

And increasingly, there is a fourth level:

they are becoming discoverable through the institutions that preserve the published and archival record.

Tower Hamlets preserves original source material.

The National Archives records the archival collection.

The National Library of Wales is ensuring that the author identity attached to published works is accurately established within the catalogue system.

Oxford has sought clarification about the B.E.E. imprint.

And the published books themselves provide the historical narratives that connect many of these strands.

That is an unusual journey for an independently developed community-history publishing project.


ONE AUTHOR. MANY SUBJECTS. MANY CATALOGUES. ONE HISTORICAL THREAD.

The result is not a neat single genre.

And perhaps it should not be.

The breadth of the work reflects the breadth of the history.

Migration cannot explain everything.

Politics cannot explain everything.

Racism cannot explain everything.

Biography cannot explain everything.

Women's history cannot explain everything.

Youth history cannot explain everything.

Each reveals a different part of the picture.

The B.E.E. imprint brings those different histories together.

And the developing library and archive record provides another layer:

the institutions preserving the work are themselves helping future generations understand where these books belong.

So the story is no longer simply about writing books.

It is about what happens to those books afterwards.

Who records them?

Who classifies them?

Who preserves them?

Who connects them to the correct author?

Who makes them discoverable?

And ultimately:

who will find them when today's community history becomes tomorrow's primary source?

That is where the significance of B.E.E. begins to extend beyond publishing.

Different subjects.

Different historical disciplines.

Different readers.

Different institutions.

One community.

One evolving historical record.

Bangladeshi East End — B.E.E.

LEGAL DEPOSIT: WHEN THE BOOK ENTERS THE NATIONAL RECORD

 

LEGAL DEPOSIT: WHEN THE BOOK ENTERS THE NATIONAL RECORD

There is another piece of evidence that changes the scale of the story.

In July 2026, the National Library of Wales contacted Mayar Akash regarding the book Zionist vs Zionist.

The letter, signed by Mark Even, explains that the author's name appears in the catalogues of the Legal Deposit Libraries and that the library was seeking clarification of the author's full name and date of birth so that the work could be correctly attributed.

This is not a review.

It is not a literary award.

And it should not be confused with a statement that the National Library of Wales has independently assessed the historical content of the book.

It is something more fundamental to the life of a published work:

bibliographic identification and preservation.

The National Library of Wales is one of the UK's legal-deposit libraries. Its own description of the system explains that legal deposit helps ensure that the nation's published output — and therefore its intellectual record and future published heritage — is collected systematically, preserved and made available for research. Publications collected through legal deposit are recorded in library catalogues and become part of the research record available to future generations.

The Library also confirms that legal deposit extends across the major UK and Irish institutions, including the British Library, Bodleian Libraries at Oxford, Cambridge University Library, National Library of Scotland, National Library of Wales and Trinity College Dublin.

This gives the B.E.E. story another dimension.

The books are not simply being sold through commercial channels.

They are entering the bibliographic infrastructure through which published works are identified, catalogued, preserved and made discoverable to researchers.

And that distinction matters.


FROM INDIVIDUAL BOOKS TO AN IDENTIFIABLE AUTHORIAL RECORD

The Welsh letter also reveals something else.

The Legal Deposit Libraries are concerned with making sure that books written by people with the same or similar names are attributed to the correct individual.

In other words, the catalogue record has to establish:

Which Mayar Akash?

The library therefore asked for clarification of the author's full name and date of birth, as well as information about other forms of the author's name.

That is a routine cataloguing process, but it is also an important stage in the long-term life of a published work.

A book can disappear from a shop.

A website can change.

A publisher can close.

A physical copy can be lost.

But once a publication has entered a national bibliographic and legal-deposit system, it has a much greater chance of remaining discoverable as part of the country's published record.

The National Library of Wales states that its legal-deposit collections are preserved for future generations and are available for consultation by readers.

For an independent author and publisher, that is a significant transition:

from publication to preservation.


AND THIS IS WHERE THE B.E.E. STORY GETS INTERESTING

The Welsh evidence should not be presented in isolation.

Put it alongside the other institutional developments surrounding the work.

Tower Hamlets Local History Library & Archives

Your original community records and photographs are preserved in an identifiable archival collection, including the S/PYO records of the Progressive Youth Organisation.

The National Archives

The S/PYO collection is also identifiable within the national archival accessions record.

Tower Hamlets Local History Library

Your Tower Hamlets Bangladeshi Politicians' Reference Book has entered the local-history environment of the borough whose political history it documents.

National Library of Wales

Your published work appears within the legal-deposit catalogue system, with the National Library contacting you to ensure the author identity attached to the catalogue record is correct.

Oxford

The Bodleian/Oxford connection adds another dimension: clarification has been sought concerning the B.E.E. imprint itself and how this body of work should be classified.

These are not all the same form of recognition.

And that is precisely why they should not be lumped together.

Some are archival preservation.

Some are bibliographic cataloguing.

Some are local-history collection and distribution.

Some concern author identification.

And some concern the classification of the B.E.E. imprint as a body of work.

Together, however, they reveal something important.


THE B.E.E. IMPRINT IS BECOMING A CATALOGUING QUESTION

This may ultimately be one of the most interesting developments in the entire project.

The B.E.E. books cover different subjects.

They cannot comfortably be placed into one conventional genre.

They encompass:

Migration

Settlement

Politics

Youth

Racism

Murder

Biography

Family history

Women's history

Community activism

Visual history

Memory

Identity

Heritage

That explains why classification becomes complicated.

If a library encounters Brick & Mortar, it can approach the book through migration and settlement history.

If it encounters Tower Hamlets Bangladeshi Politicians Reference Book, it is political and local-government history.

If it encounters B.E.E. Murders, it enters the territory of racist violence, crime history and community memory.

If it encounters NARI, it enters women's history, biography and British Bangladeshi social history.

If it encounters Altab Ali: The Symbol, it moves into memory, identity and cultural history.

Yet these books remain connected through the B.E.E. imprint.

That is why the question of classification becomes meaningful.

The challenge is not simply:

“What category does this book belong to?”

It is also:

“What is the body of work?”


WHEN COMMUNITY HISTORY BECOMES RESEARCH MATERIAL

This is perhaps the most important distinction.

The B.E.E. project began from a community perspective.

It was not created by a university department as an academic publishing programme.

It was not commissioned by a national archive.

It grew from lived experience, community involvement, photography, documentation, research, interviews, memory and a determination to record histories that could otherwise disappear.

But once those histories are published, catalogued and preserved, their potential audience changes.

They become available to:

  • researchers
  • students
  • historians
  • family historians
  • librarians
  • archivists
  • descendants
  • community organisations
  • future generations

The author may begin with the community.

The archive has a much longer horizon.


THE LONG JOURNEY OF A B.E.E. BOOK

Perhaps the simplest way of understanding what is happening is to follow the journey.

Lived experience

Community documentation

Photographs, testimony and research

Independent publication

B.E.E. imprint

Library catalogue

Archive

Legal deposit

National bibliographic record

Future research

That is a very different measure of impact from book sales alone.

A sales ranking tells us what happened at a particular moment in a commercial marketplace.

An archive or legal-deposit record tells us something else:

the work has acquired a potential life beyond the marketplace.


NOT ONE GENRE — A HISTORICAL CORPUS

This brings us back to the central argument.

B.E.E. should not be described as one genre.

It is better understood as a historical corpus organised around a particular community, geography and experience.

The books have different subjects because communities have different histories.

The migration story is not the political story.

The political story is not the youth story.

The story of racism is not the same as the story of family.

The story of Altab Ali's murder is not identical to the story of how his name became a symbol.

The history of women cannot simply be absorbed into the history of men.

And the history of one generation cannot explain the next.

Each requires its own lens.

That is why the B.E.E. collection needs to be understood title by title and as a body of work.


FROM THE EAST END TO THE NATIONAL RECORD

There is something particularly fitting about this journey.

Much of the history recorded in these books concerns people whose stories were once marginal to the dominant historical record.

People who arrived as migrants.

People who worked in restaurants, factories and workshops.

Young people confronting racism.

Families building lives in East London.

Women building community networks.

Political activists demanding representation.

Victims whose names risked being forgotten.

Communities creating their own forms of resistance and remembrance.

Now the historical record is beginning to move in the opposite direction.

The material is being:

recorded.

catalogued.

preserved.

classified.

made discoverable.

And that is perhaps the most powerful form of recognition an independently produced community history can receive.

Not simply that somebody bought the book.

But that somebody, somewhere, may still be able to find it decades from now.


THE B.E.E. PROJECT: PRESERVING THE PIECES

The story of Bangladeshi East London is too large for one book.

It requires many books.

Different subjects.

Different generations.

Different voices.

Different forms of evidence.

The B.E.E. collection is therefore best understood not as a conventional series where every title belongs to the same genre, but as an evolving attempt to preserve the different pieces of one community's history.

And now those pieces are beginning to exist in another place as well:

the institutional memory of libraries and archives.

From the streets of Tower Hamlets to local archives.

From independent publishing to legal deposit.

From community photographs to national catalogues.

From individual books to questions of imprint classification.

The journey is no longer simply about publishing history.

It is becoming part of the history of how that history is preserved.

One community.

Many histories.

Different subjects.

One evolving imprint.

Bangladeshi East End — B.E.E.

Six Years After Publication: What Impact Has W.G & ME Made?

 

Six Years After Publication: What Impact Has W.G & ME Made?

A personal story of surviving Wegener's Granulomatosis that travelled beyond Britain



In August 2020, I published a book that was very different from the historical, community and cultural books I had previously written.

It was personal.

Very personal.

W.G & ME: Surviving Wegener's Granulomatosis was not a book I wrote simply because I wanted to add another title to my publishing catalogue.

It came from experience.

It came from fear.

It came from uncertainty.

And ultimately, it came from survival.

Today, six years after its publication, I wanted to ask an important question:

What impact has W.G & ME actually made?

Has it simply disappeared into the enormous world of independently published books?

Has it remained confined to the United Kingdom?

Or has the story travelled further than I originally imagined?

The answer is interesting.


A book written from inside a medical condition

Wegener's Granulomatosis, now more commonly known as Granulomatosis with Polyangiitis (GPA), is a serious form of vasculitis. The condition was officially renamed GPA in 2011 and can affect areas including the kidneys, lungs, ears, nose and sinuses.

But medical information can only tell us part of the story.

A diagnosis can explain what is happening to the body.

It cannot necessarily explain what happens to the mind.

It cannot fully describe the fear of being told that your life may change forever.

It cannot describe what it feels like to sit with uncertainty.

And it cannot always explain how a person finds a way forward.

That was where W.G & ME came from.

It was not written as a medical textbook.

I am not a doctor.

I do not claim to provide medical advice.

Instead, the book was written from the perspective of someone who had to live through the reality of a serious autoimmune condition.

There is an important difference between reading about a condition and reading the experience of someone living inside it.

One gives us information.

The other can give us understanding.


The importance of lived experience

When someone receives a serious diagnosis, they often enter a completely unfamiliar world.

Suddenly there are medical terms.

Consultants.

Medication.

Hospitals.

Tests.

Side effects.

Possibilities.

And sometimes fear.

For a person living with a rare condition, there can also be something else:

loneliness.

You may have doctors around you.

You may have family around you.

But you can still wonder:

Has anyone else felt like this?

Has anyone else been afraid in this way?

Has anyone else questioned what the future will look like?

Has anyone found a way to continue living a meaningful life?

This is where lived-experience books can have a different kind of value.

They may never become international bestsellers.

They may never receive thousands of online reviews.

But they can reach someone at the right moment.

And sometimes, for that one reader, that can matter enormously.


Six years later, the book is still travelling

One of the most interesting things I have discovered while looking again at W.G & ME is that the book has not simply disappeared after publication.

The book was released on 5 August 2020 as a 190-page English-language paperback with ISBN 9781910499320. Six years later, that same ISBN is still being recognised and used by booksellers in multiple countries.

The book was published in Britain.

But its ISBN and book information have travelled far beyond Britain.

It can still be found through bookselling and distribution platforms reaching readers in:

The United Kingdom.

The United States.

Australia.

Canada.

Germany and continental Europe.

India.

And beyond.

For an independently published specialist book, this matters.

Because there is a major difference between a book being published and a book remaining discoverable.

Many books have a short moment of visibility.

They are announced.

They are promoted.

A launch takes place.

Then gradually they disappear.

But W.G & ME is still there.

Still searchable.

Still listed.

Still capable of being discovered by someone who may be searching for information about Wegener's Granulomatosis, GPA, autoimmune illness, vasculitis, survival or the personal experience of serious illness.


The factual impact: what can actually be measured?

It is easy to make large claims about the impact of a book.

It is much more useful to look at what can actually be verified.

Six years after publication, there are several measurable facts about W.G & ME.

1. The book has remained commercially discoverable for six years

The book was released in August 2020.

It is still listed and available through bookselling platforms in 2026.

That is a measurable form of publishing longevity.

A current listing is not proof of a particular number of sales.

But it does demonstrate that the book's ISBN, metadata and distribution information have remained active within the international book trade.

The book is currently listed by retailers and booksellers including Hatchards in the United Kingdom, ThriftBooks in the United States, Mighty Ape in Australia, Indigo in Canada, Hugendubel in Germany, iMusic in European markets and Bookscape in India.

For a specialist independently published memoir, that is a significant distinction.

The book has not remained solely on the publisher's own website.

It has entered wider bookselling systems.


2. The book has reached recognised booksellers

One particularly useful measure is where the book appears.

In Britain, W.G & ME is listed by Hatchards, one of the country's best-known booksellers, where it remains available to order.

In the United States, it appears in the catalogue of ThriftBooks, where it is listed among Mayar Akash's more prominent titles.

The book is also listed by Mighty Ape in Australia and Indigo in Canada, demonstrating that its distribution data has reached major retail systems outside Britain.

This does not mean that every listing represents a large number of sales.

But it does establish something factual:

the book has achieved international retail discoverability.


3. The book has crossed into the American book market

The United States was an important development in the life of the book.

Today, W.G & ME can be found through American bookselling systems including ThriftBooks and American eBay listings.

This is important because an independently published British book does not automatically become visible to American readers simply because it exists online.

For a title to appear within American retail catalogues, the book's identifying information must move through the international publishing and bookselling infrastructure.

The measurable impact is therefore not yet that we can prove how many Americans have read the book.

The evidence does not allow that claim.

The measurable impact is that:

  • the book has entered American retail systems;
  • American readers can discover and order it;
  • American sellers categorise it across medical, biography and healing-related areas;
  • the book remains part of the author's American-facing catalogue years after publication.

That is a real form of international reach.


4. The book is being positioned in more than one category

Another interesting factual finding is that different bookselling systems do not treat W.G & ME as belonging to only one narrow subject.

An American eBay listing categorises the book within areas including Medical, Healing / General, Biography & Autobiography and Body, Mind & Spirit.

This matters because discoverability often depends on how a book is categorised.

A reader does not necessarily have to search specifically for "Mayar Akash".

They may encounter the book while searching around:

  • illness memoir;
  • medical experience;
  • healing;
  • autobiography;
  • autoimmune illness;
  • vasculitis;
  • survival.

In other words, the book's potential discovery routes have become wider than the author's original personal network.


5. The book has been independently surfaced beyond ordinary retailer listings

The book has also appeared in external book-discovery and comparison content.

One independent book-ranking site surfaced W.G & ME within its book listings and linked the title to Amazon, eBay and Walmart discovery routes. The site's own score should not be treated as an Amazon ranking or as an authoritative literary award, but its inclusion is evidence that the book's metadata has travelled beyond the publisher and ordinary retailer catalogue pages.

This is an important distinction.

The book has not only been placed on sale.

It has also been collected and indexed by other book-discovery systems.

That increases the number of possible routes by which a reader may encounter it.


6. The book remains one of the more visible titles in the author's international catalogue

ThriftBooks currently includes W.G & ME in its "Most Popular Books" presentation for Mayar Akash.

This is not the same as a verified sales ranking.

Nor should it be presented as one.

But it is still a meaningful visibility signal within that retailer's presentation of the author's work.

Among a large and varied catalogue of books covering British Bangladeshi history, the East End, art, poetry, Sylhet and personal writing, W.G & ME continues to appear as one of the titles surfaced prominently by the retailer.


What the evidence does — and does not — prove

The factual evidence is strongest in four areas:

Longevity

The book has remained commercially discoverable six years after publication.

International reach

It is listed across multiple national bookselling markets.

American entry

The book has entered and remained discoverable within American retail systems.

Multi-category discoverability

Retailers classify it not only as a book about a medical condition, but also within autobiography, healing and body/mind/spirit-related categories.

What the current public evidence does not prove is:

  • the total number of copies sold;
  • the number of readers in America;
  • the exact number of people helped by the book;
  • the book's current or historical Amazon Best Sellers Rank unless that figure can be independently verified;
  • direct medical outcomes.

That distinction is important.

A serious assessment of impact should not exaggerate.

But it should not underestimate either.

International discoverability is itself a measurable publishing achievement.


From Britain to America

One of the most interesting questions is what happened when the book travelled to the United States.

America has a much larger population.

It also has a vast publishing market.

But that also means a book can easily disappear among millions of other titles.

Yet W.G & ME has continued to appear within American bookselling systems.

This does not automatically mean that thousands of Americans have read the book.

It would be dishonest to make claims about readership that cannot be proven.

But it does mean something important.

The book has crossed borders.

A reader in America can potentially discover a story written by a British author about living with a rare autoimmune disease.

A book which began as one person's experience has entered an international system where someone thousands of miles away can encounter it.

That is impact of a different kind.

The book is no longer limited by geography.

The story can travel further than the author.


Discoverability is an achievement in itself

We often judge books by sales figures.

Or Amazon rankings.

Or reviews.

And of course, these things matter.

A high Amazon ranking can demonstrate a particular moment when a book reached a significant number of readers.

But rankings are temporary.

They rise.

They fall.

They disappear.

A book that is ranked highly today may be invisible tomorrow.

There is another question that deserves to be asked:

Is the book still alive in the publishing ecosystem?

Six years after publication, W.G & ME is still discoverable.

Its ISBN continues to identify it.

Retail systems continue to recognise it.

Bookselling platforms continue to list it.

Readers can still find it.

That is not necessarily the same as a bestseller.

But neither is it failure.

For a specialist independently published book dealing with a rare medical condition, longevity may be one of the most important measures of success.


A story that has changed with time

There is something else about W.G & ME that could not have been known when the book was published.

The story has continued.

When I wrote about living with Wegener's Granulomatosis, I was writing from inside an experience that had fundamentally changed my life.

But life did not stop.

Six years after the book was published, I am still here.

Still writing.

Still publishing.

Still working.

Still creating.

Still involved with my community.

Still producing books.

Still helping other writers bring their voices into the public domain.

In many ways, that gives the book an additional meaning today.

The book remains a record of fear, uncertainty and survival.

But the years that followed its publication have become part of its wider story.

The author continued.

And perhaps that continuation says something important.

Not that illness can simply be overcome.

Not that everyone with a serious condition will have the same experience.

And certainly not that a positive attitude is a substitute for medical treatment.

But that a life-changing diagnosis does not necessarily mean that life itself ends at the point of diagnosis.


More than a medical memoir

I believe W.G & ME belongs to several worlds at once.

It is a personal story.

It is a memoir.

It is a book about illness.

It is a survival story.

It is a record of lived experience.

And it is part of a wider conversation about how we understand medical conditions.

Medical professionals can explain a disease.

Research can explain treatment.

Statistics can explain probabilities.

But there is another kind of knowledge.

The knowledge of living.

The knowledge of waking up and wondering what the day will bring.

The knowledge of adapting.

The knowledge of fear.

The knowledge of relationships changing.

The knowledge of trying to remain yourself while your body and circumstances are changing.

That knowledge is difficult to measure.

But it is real.

And it deserves to be documented.


What does impact really mean?

Perhaps this is the biggest question.

How do we measure the impact of a book like this?

Is it by sales?

Yes, partly.

Is it by Amazon rankings?

Possibly.

Is it by reviews?

They can certainly tell us something.

But there are other measurements.

A book can make an impact because:

  • someone discovers that they are not alone;
  • a family member gains a better understanding of illness;
  • a friend begins to understand the fear behind a diagnosis;
  • a newly diagnosed patient reads about another person's journey;
  • a healthcare professional sees illness from a patient's perspective;
  • a reader discovers a condition they previously knew nothing about;
  • someone finds hope simply because another person has continued.

Those things are much harder to measure than a number on an Amazon chart.

But perhaps they are sometimes more important.


The untapped potential of the book

Six years after publication, I believe W.G & ME may still have an audience it has not fully reached.

The book was written.

It was published.

It travelled into international distribution.

But the conversation around the book can still continue.

There are potentially readers within:

  • vasculitis communities;
  • GPA and Wegener's Granulomatosis support networks;
  • rare disease communities;
  • autoimmune illness groups;
  • patient experience projects;
  • medical humanities;
  • memoir readers;
  • carers and family members;
  • people recently diagnosed with serious conditions.

The book does not have to be newly published to be newly discovered.

In fact, a book about lived experience can sometimes become more valuable with time.

Because the story has been tested by time.


A book that continues to live

When W.G & ME: Surviving Wegener's Granulomatosis was published in 2020, it marked one point in a much longer journey.

Today, six years later, I can look back and see that the book has travelled.

It has moved beyond the original publication.

Beyond one town.

Beyond one country.

And into international bookselling systems.

But perhaps its greatest journey is not geographical.

Perhaps its greatest journey is human.

From diagnosis to survival.

From fear to expression.

From private experience to public testimony.

From illness to a book.

And from one person's story to the possibility that someone, somewhere else in the world, may one day discover it and recognise something of themselves within its pages.

That is the impact that cannot always be measured by an Amazon ranking.

A ranking lasts for a moment.

A book can remain.

And six years later, W.G & ME is still here.

So am I.

And perhaps that, in itself, is part of the story.